Nursing Resources

Providing bedside nursing care for adults with congenital heart disease (CHD), who may be hospitalized in either an adult or pediatric facility, requires a special standard of care. Below is a list of resources which have been developed by a group of advanced practice nurses from around the country with the goal of providing a quick, comprehensive overview of the bedside care for the nurse at the point of care.

Each topic in this outline — ACHD Care, Congenital Heart Defects, Neonatal and Pediatric Care — may be opened, printed, and taken to the bedside for quick reference or serve as a guideline for further investigation on the care or problems that are presented by the ACHD patient. Every effort has been made to provide the most current, up-to-date practice recommendations, however institutional differences may occur.

Translations of the resources are available in both Hindi and Spanish.

Translations

Nursing Resources Translated into Hindi
Nursing Resources Translated into Spanish

ACHD Care

• Anticoagulation with Warfarin
• Arrhythmias in ACHD
• Comfort Management
• Discharge Guidelines
• Eisenmenger Syndrome & Cyanotic Congenital Heart Disease
• Postoperative Glycemic Control
• Pulmonary Hypertension
• Pulmonic Ventricular Dysfunction
• Pregnancy and Congenital Heart Disease

Congenital Heart Defects

• Aortic Valve
• Atrial Septal Defect
• Atrioventricular Septal Defects
• Clinical Guidelines for CHD – Contributors
• Coarctation of the Aorta
• Congenitally Corrected Transposition of the Great Arteries
• Ebstein’s Anomaly
• Hypoplastic Left Heart Syndrome
• Mitral Valve
• Pulmonary Atresia – Intact Ventricular Septum
• Pulmonary Valve Guideline
• Tetralogy of Fallot
• Tetralogy of Fallot – Absent Pulmonary Valve
• Tetralogy of Fallot – Pulmonary Atresia
• Total Anomalous Pulmonary Venous Return
• Transposition of the Great Arteries
• Tricuspid Atresia
• Tricuspid Valve Guideline
• Truncus Arteriosus
• Ventricular Septal Defect

Neonatal and Pediatric Care

• Anticoagulation in Pediatric Cardiology
• Care and Management of the Cardiac Patient on Venous-Arterial Extracorporeal Membrane Oxygenation (VA-ECMO)
• Care of the Preterm Neonate
• Closed Sternal Wound Care in Pediatric patients with CHD
• Guidelines for the General Principles of Postoperative Care: The Neonatal and Pediatric Cardiac Surgery Patient
• Hemodynamic Monitoring in the Neonatal and Pediatric Cardiac Patient
• Interstage Monitoring for the Infant with Hypoplastic Left Heart Syndrome
• Neonatal and Pediatric Guidelines for Arrhythmia Management
• Neonatal and Pediatric Developmental Guidelines in the Care of the Neonate/Child/Adolescent Cardiovascular Patient
• Nutrition Guidelines for the Pediatric and Neonatal Congenital Heart Patient
• Open Sternotomy and Delayed Sternal Closure
• Pediatric Neonatal Pulmonary Hypertension
• Permanent Pacemaker
• Pleural Effusions in Neonatal and Pediatric Cardiac Patients
• Prevention of Device Associated Infections in the Neonatal and Pediatric Cardiac Patient
• Temporary Pacemaker

Illustrations for the documents on congenital heart defects were provided by Ped Heart Resource. ©Scientific Software Solutions, 2010.

We appreciate their support of this project. Please visit the Scientific Software Solutions website to view their references on both care of the adult with congenital heart disease and congenital heart disease and repair.

Links to additional electronic resources in the care of adults with congenital heart disease include:

• Adult Congenital Heart Association
• American Heart Association:
  ACC/AHA 2008 Guidelines for the Management of Adults With Congenital Heart Disease
• Congenital Cardiac Nurses Association
• Coventry Program
• Northeast Pediatric Cardiology Nurses Association
• Society of Pediatric Cardiovascular Nurses

Adult Congenital Heart Disease Resources Original Writing Group

Chairperson
Mary Rummell, MN, RN, CNS, CPNC Clinical Nurse Specialist, Pediatric Cardiology

Co-chairperson
Sandy Staveski, MS, RN, PNP, CNS, CCRN Cardiovascular ICU Nurse Practitioner

Members
Loren Brown, BSN, RN, CCRN Clinical Nursing Educator, Cardiovascular Catheterization Lab

Diana Arias, MSN, ARNP, FNP-C, CPN Clinical Specialist, Cardiac Care Center

Kathryn Barrett, NP-C, RN, CCRN Nurse Practitioner, Pediatric Cardiac Intensive Care Unit

Louise Callow RN, MSN, CPNP Pediatric Cardiac Surgery Nurse Practitioner

Andrea Frederick, RN, NP Nurse Practitioner, Adult Congenital Cardiology

Annette Haynes, MS, RN, CNS, CCRN Cardiology Clinical Nurse Specialist

Joylyn Headings, FNP, RN, CCRN Nurse Practitioner, Pediatric Cardiac Intensive Care Unit

Lindsey Katzmark, MSN, RN, APNP Nurse Practitioner, Adult Congenital Heart Disease Program

Jo Ann Nieves, MSN, CPN, ARNP, PNP-BC Nurse Practitioner, Cardiology

Nancy Rudd, MS, RN, CPNP-AC/PC Nurse Practitioner, Pediatric Cardiology & Adult Congenital Heart Disease Program

Julie A. Shinn, MA, RN, CNS, CCRN, FAAN Cardiovascular Clinical Nurse Specialist, Cardiovascular Surgery

Margaret Schroder, MSN, RN, PNP-BC Nurse Practitioner, Cardiovascular Surgery