This webpage contains a collection of bedside resources for the practitioner who is providing bedside nursing care for adults with congenital heart disease (CHD). These patients may be hospitalized in either an adult or pediatric facility. These resources have been developed by a group of advance practice nurses from around the country with the goal of providing a quick, comprehensive overview of the bedside care for the nurse at the point of care. Each topic in this outline may be opened, printed, and taken to the bedside for quick reference or serve as a guideline for further investigation on the care or problems that are presented by the ACHD patient. Every effort has been made to provide the most current, up-to-date practice recommendations however institutional differences may occur.
ACHD Care
- Adult Congenital Heart Disease Resources – Original Writing Group
- Intro and Table of Contents for the Revised ACHD Guidelines
- Anticoagulation with Warfarin
- Arrhythmias in ACHD
- Comfort Management
- Discharge Guidelines
- Eisenmenger Syndrome & Cyanotic Congenital Heart Disease
- Postoperative Glycemic Control
- Pulmonary Hypertension
- Pulmonic Ventricular Dysfunction
- Pregnancy and Congenital Heart Disease
Congenital Heart Defects
- Aortic Valve
- Atrial Septal Defect
- Atrioventricular Septal Defects
- Clinical Guidelines for CHD – Contributors
- Coarctation of the Aorta
- Congenitally Corrected Transposition of the Great Arteries
- Ebstein’s Anomaly
- Hypoplastic Left Heart Syndrome
- Mitral Valve
- Pulmonary Atresia – Intact Ventricular Septum
- Pulmonary Valve Guideline
- Tetralogy of Fallot
- Tetralogy of Fallot – Absent Pulmonary Valve
- Tetralogy of Fallot – Pulmonary Atresia
- Total Anomalous Pulmonary Venous Return
- Transposition of the Great Arteries
- Tricuspid Atresia
- Tricuspid Valve Guideline
- Truncus Arteriosus
- Ventricular Septal Defect
Neonatal and Pediatric Care
- Anticoagulation in Pediatric Cardiology
- Care and Management of the Cardiac Patient on Venous-Arterial Extracorporeal Membrane Oxygenation (VA-ECMO)
- Care of the Preterm Neonate
- Closed Sternal Wound Care in Pediatric patients with CHD
- Guidelines for the General Principles of Postoperative Care: The Neonatal and Pediatric Cardiac Surgery Patient
- Hemodynamic Monitoring in the Neonatal and Pediatric Cardiac Patient
- Interstage Monitoring for the Infant with Hypoplastic Left Heart Syndrome
- Neonatal and Pediatric Guidelines for Arrhythmia Management
- Neonatal and Pediatric Developmental Guidelines in the Care of the Neonate/Child/Adolescent Cardiovascular Patient
- Nutrition Guidelines for the Pediatric and Neonatal Congenital Heart Patient
- Open Sternotomy and Delayed Sternal Closure
- Pediatric Neonatal Pulmonary Hypertension
- Permanent Pacemaker
- Pleural Effusions in Neonatal and Pediatric Cardiac Patients
- Prevention of Device Associated Infections in the Neonatal and Pediatric Cardiac Patient
- Temporary Pacemaker
Pautas de enfermeria
- *Anticoagulación en Cardiología Pediátrica
- *Cuidado de la herida postoperatoria
- *Cuidado del neonato pretérmino
- *Cuidado del paciente con marcapaso implantable permanente en el paciente cardíaco pediátrico y neonatal
- *Cuidado del paciente con marcapaso implantable transitorio en el paciente cardíaco pediátrico y neonatal
- *ECMO VA
- *Efusión pleural en pacientes cardíacos neonatales y pediátricos
- Guía de desarrollo neonatal y pediátrica en el cuidado del paciente cardiovascular neonatal
- *Guía de principios generales del cuidado post quirurgico
- *Guía nutricional para el paciente pediátrico y neonatal con cardiopatía congénita
- *Guía sobre el manejo de la arritmia en el paciente pediátrico y neonatal
- *Hipertensión pulmonar en pacientes neonatales y pediátricos con cardiopatía congénita
- *Monitoreo “entre etapas” para el bebé con Síndrome de Corazón Izquierdo Hipoplásico
- Monitoreo hemodinámico en paciente cardíaco neonatal y pediátrico
- *Prevención de infecciones asociadas a dispositivos en el paciente cardiaco neonatal y pediátrico
Illustrations for the documents on congenital heart defects were provided by PedHeartResource. ©Scientific Software Solutions, 2010.
We appreciate their support of this project. Please visit the Scientific Software Solutions website to view their references on both care of the adult with congenital heart disease and congenital heart disease and repair.
Links to additional electronic resources in the care of adults with congenital heart disease include:
- Adult Congenital Heart Association
- American Heart Association:
ACC/AHA 2008 Guidelines for the Management of Adults With Congenital Heart Disease - Congenital Cardiac Nurses Association
- Coventry Program
- Northeast Pediatric Cardiology Nurses Association
- Pregnancy information on care for women who have congenital heart disease
- Society of Pediatric Cardiovascular Nurses